2012

Cancer & Theology

This post is a part of a series which features an assortment of adroit voices exploring how to think theologically about cancer and those who have it. Read the series introduction or view all posts in the series.

Like others have mentioned, there will be profanity in this post. If you don't like that - go ahead and skip this post.

Jake asked me to blog about cancer and theology. At first, I wasn't sure I'd have much to say. I mean, I don't have cancer. But then, I got thinking and realized that my grandmommy died of cancer and my granddaddy died of cancer and my uncle died of cancer and my father had a run in with skin cancer. I also served as a chaplain for a summer in a hospital and met many people suffering from cancer.

Now, I don't know if all that necessarily qualifies me for having anything of worth to say about cancer. But. On October 25, 2010, my wife and I lost our two twin baby boys, Micah and Judah, just shy of 20 weeks into our pregnancy.

While infant loss and cancer are very different scenarios, they both fuck with your mind, your faith and everything else — so... I guess that counts for some ability to muse about faith-disrupting diseases and losses.

When we lost our babies, it was like time stood still. I knew shitty things happened to people during pregnancies, but I didn't imagine it would happen to us. Why would it happen to us?

Of course I went into the whole theological debate with myself about where God was in all of this, whether God caused this happen, why God would let this happen... and all of those other thoroughly unhelpful questions that one cannot but help to ask in the beginning.

Then I just got pissed. Like, really pissed. At the time, I owned a little 150cc scooter. One afternoon, I took a ride out on some country roads and drove as fast as my little scooter would take me (about 65mph). Once you can get the comical image out of your mind of a guy racing through the country on a scooter screaming at the top of his lungs... I'm guessing you might be able to relate with that anger.

I was angry at God.

Fortunately, we had many people in our lives who cared about us and wanted to do what they could. My Facebook Wall was filled with kind sentiments, prayers and lamentations. People brought prepared meals to our home. They sent cards and flowers and text messages. And it all helped. It really did.

But then the cards stopped coming.

The food no longer was delivered to our house.

The flowers died.

My faith began to be messed with.

And everyone else's life went on, back to normal. And we were left alone, trying to figure out what life meant after the death of our sons.

Jake didn't want us addressing his specific cancer, but I need to say that when I first heard about his diagnosis, I remember seeing it on Facebook and just saying, "Shit." I don't remember what I wrote, but it was short, and I just wanted him to know that I knew.

I followed his subsequent tweets and video/blog updates with great interest. I wanted him to know I was there, at least digitally, for him.

But then life caught up with me. Things got busy. And I had to get on with life after his diagnosis.

No matter how great the support of your partner, family, faith community, and others is, at some point, you will be left alone with your grief and frustration and anxiety and loss. And it's at those times when I had to try to come to terms with the fact that somehow, God was with me in my faith-disrupting dark night of the soul. I wasn't sure how it all worked out theologically, and to be honest, at that time, that wasn't very important to me. What was important was knowing that God was as pissed and angry about the death of Micah and Judah as I was, and God was sitting with me, with us, in our sadness and suffering.

So, if I had to share with someone a theological one-liner that might be appropriate for people in these tragic situations of death, loss, cancer and grief... it'd probably be something like:

"Know that somehow... God is with you in this. God is just as pissed and angry about this shitty situation, and God is there with you, suffering with you."

Adam Walker CleavelandAdam Walker Cleaveland is a Presbyterian pastor, father of 3 (1 living), husband, social media consultant, Apple fanboy, progressive Christian who lives in Ashland, Oregon. You can find him online at Pomomusings, Dazed Dad, Facebook, Twitter and of course, Google+.

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The latest video update is below. If you're unable to see the embedded video, click here to watch it on YouTube.

If you don't mind, please be sure to "like" the video by clicking the thumbs-up while it's paused. Thanks!

As I mention in the video, one of the things I find myself struggling with lately is how to balance the continuing documentation of my treatment and all of its side-effects while remaining sensitive to the fact that nobody wants to watch video after video of me complaining and/or sleeping/vomiting/cramping, etc. In fact, during those times the last thing I think to do is reach for the video camera; I'd rather reach for (1) my wife or (2) some form of medication, and not necessarily always in that order.

Truth be told, I am starting to get really annoyed by the whole process. I am actually angered by the mere fact that I have to go in again on Friday ("...but I just started feeling better, damnit!") to get the next treatment — so much so that the thought of it makes my body respond by becoming nauseous (which, subsequently just makes me angrier). But yet I remain committed to documenting this whole crazy thing, and part of that documentation is the fact that life goes on despite the occasional interruption of chemotherapy and its terribly annoying and sometimes debilitating side effects.

This Friday is treatment number six, a number that seems unbelievable in two totally opposing ways: "It's already treatment number six?!" and "You're telling me I have to do this three more times?!" Oscillation between extreme optimism and pessimism is something that having cancer and enduring its treatment has made me uncomfortably familiar with. Again with the How-do-you-document-that-experience-on-film-without-being-a-Debbie-Downer? thing. Sometimes it seems as if the biggest battle is fought in the arena of my mind; the aforementioned oscillation isn't something that occurs over the course of days, it more frequently happens within the course of a single hour. One minute I'm convinced I'm at 100% and determined to be Really Productive Today and the next I'm hit with a wave of tiredness (a relatively benign side effect, I know) and convinced that Today Totally Sucks.

Thankfully, hope isn't contingent upon the scale of optimism overwhelmingly outweighing the scale of pessimism; it requires but the most infinitesimal difference. And in the grand scheme of things, hope always manages to win, even if by a hair. That's why, all optimism/pessimism talk aside: Let's freaking do this.

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Cancer & Theology

This post is a part of a series which features an assortment of adroit voices exploring how to think theologically about cancer and those who have it. Read the series introduction or view all posts in the series.

Our family is moving. As we pack up our stuff, making sure that each item is securely packaged, I’m also shifting things inside myself. My husband is going to start a new church. For the first time in fourteen years, I will not be a pastor serving a particular congregation.

As I sorted through this transition, my daughter asked why I loved being a pastor so much. I thought about my job and a list of duties ran through my head. It was not the business meetings, volunteer arm-twisting, or endless emails that made me satisfied at the end of a long day. I enjoyed preaching and teaching, but when I imagined what I loved, the first thing that came mind was that invitation to a person's side during those sacred moments.

"I'm with people in the most difficult times of their lives," I answered. "I pray with them and try to remind them that God is with them." I remembered the days of sitting beside a hospital bed, holding hands, praying the Psalms, and eventually standing over a person as they journeyed over from life to death. The experience always transformed us — both of us. When we understood our mortality, that feeling of absolute dependence grew and we learned something about God.

As I moved the boxes up to the attic, I was thankful for our sturdy, climate controlled, weather-proofed home. We lived here for almost seven years. When it was cold, we stayed warm. When it rained, we remained dry. When it was hot, I turned on the air conditioner. Even when a hurricane hit last year, the only destruction the storm could manage was blowing off a bit of side trim.

Most of us have houses that keep us separated from the outside elements. Many of us have jobs in offices with air conditioning and heat. Usually, we drive from our homes to work with regulated temperatures in our cars.

In the history of the world, have we ever done such a superb job controlling our environment? I don’t mean the larger environment — that is terribly out-of-whack. I just mean those tiny, dry, 73 degree bubbles in which we work and live — the rooms that are full of the humming of computers, the buzzing of lightbulbs, and the whispers from air-blowing vents.

I wonder if that particular, personal comfort is a small part of why there is a take-it-or-leave-it attitude toward religious beliefs in our country. Think about it. If it stormed and we felt the brutality of wind and soak, if our food source came directly from the soil in our own fields, and if a water shortage meant nothing to drink, I imagine we would pray a bit more. Instead, we find shelter, go to the grocery store, and turn on a faucet.

In short, we’re out of touch with our own mortality. We pray, "Give us this day our daily bread," when our real supplication may be "God, help me to stay on this diet." When we come face-to-face with our human frailty, we tend to learn something about the nature of God. As it is, many of us do not feel that absolute dependence.

This Atlantic Monthly article says that when we become more aware of the end of our lives, we long to become a part of something larger than ourselves. I have certainly seen that happen. I appreciate this analysis, and yet it tends to reduce religion to a Terror Management tool. Religion becomes one of those moving boxes, a place where we can enfold our fears in order to get them out of the way. Terror Management Theory does not convey the flood peace and strength that the presence of God can give in these times of waiting beside the bed.

Usually, I sit with people who have cancer. Cancer creeps into the sturdiest of homes and even when we are dry and seventy-three degrees, it reminds us of our mortality. If we live long enough, most of us will have an irregular tumor, lump in the breast, blood in our urine, or another tell-tale sign of cancer’s effect. Cancer can leave us with fear and desperation. It can cut lives much too short. Other times, we become inspired by the great resilience of people who beat the odds. We want to grasp on to life with all of its abundance, extracting meaning from each moment.

In all of it, we understand the depth of what Friedrich Schleiermacher called the "feeling of absolute dependence." We become fully aware that it is in God that we live and move and have our being. Schleiermacher is considered to be the father of liberal Christian theology; however, I think he has had a considerable, unwitting impact on evangelical theology as well. (The "feeling of absolute dependence" sounds a lot like the "God-shaped vacuum" to me.) His work impacts us all.

As our lives move and shift, as we sort out the importance of who we are, as we gain perspective on our days, and as we struggle with something as profound as cancer, may we always be aware of our absolute dependence.

Carol Howard MerrittCarol Howard Merritt is a pastor at Western Presbyterian Church in Washington, D.C. She is the author of Reframing Hope and Tribal Church. She blogs at TribalChurch.org, which is hosted by the Christian Century and she cohosts God Complex Radio with Derrick Weston.

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Bonhoeffer with confirmation students

Above: Dietrich Bonhoeffer poses with boys who have just been confirmed (Spring 1932). After Confirmation the boys of the Zion's Church congregation have a weekend getaway.

On the evening of April 9, 1938, Dietrich Bonhoeffer preached a sermon he'd written for his small group of confirmation students — Maximilian von Wedemeyer, Spes von Bismarck, and Hans-Friederich von Kleist-Retzow — on the estate of the Kleist-Retzow family.

Though penned nearly seventy-five years ago, his words to the young confirmands are, in my opinion, as germane and stirring as ever.

Unfortunately, the text of Bonhoeffer's sermon, based on Mark 9:24, is buried deep within Volume 15 of the Dietrich Bonhoeffer Works series: Theological Education Underground, 1937-1940.

At the church where I serve, we recently had a group of young people confirmed. The week before the worship service in which the Affirmation of Baptism occurs, we hold a banquet for family, friends, and mentors of the confirmands. We break bread together, share stories, and (perhaps most importantly!) walk through the upcoming worship service so everyone is on the same page.

This year, however, while folks were eating their meals, I decided to read Bonhoeffer's confirmation sermon in it's entirety. While attempting to cobble together my own remarks, I kept coming back to Bonhoeffer's own words and eventually resolved just to read his sermon instead.

Though I probably shouldn't be, I was surprised at how well the folks at the banquet received Bonhoeffer's words; I quickly decided that I had just begun a new tradition. I'll be sending out a physical copy of the sermon to all the confirmands' families as well.

Because myself and others found the experience so moving, and because of the small amount of people who actually own Volume 15 of the Dietrich Bonhoeffer Works series, I am making the full text of his confirmation sermon available on this website in both Microsoft Word format and PDF, which can be downloaded below (the proper MLA attribution is available within the files).

Feel free to use however this however you see fit. If you do wind up using it somehow, I'd be thrilled if you left a comment on this blog post describing when/how you worked it into your confirmation festivities. And if you see a typo in the Word document (I had to transcribe the whole thing) please let me know, and I'll get it fixed!

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Cancer & Theology

This post is a part of a series which features an assortment of adroit voices exploring how to think theologically about cancer and those who have it. Read the series introduction or view all posts in the series.

Warning: I'm going to start crassly and swear in this post... so if you don't like that kind of thing, do something else on the internet.

Jake asked specifically to NOT address his cancer in this post, so I won't, rather I'll do what I’ve tried to do with all my own theological work: I'll try to seek for God by addressing my own existential issues with this demon called cancer.

But to do that I first need to reference Jake one more time, before completely taking the spotlight off him and placing it on my borderline narcissistic self, (which I suspect many of the rest of you share with me, and talking about terminal diseases exposes it in us all). I say this as much as a confession as anything else, so here it is...

When I found out Jake had cancer I had two EQUAL emotions that moved into direct contemplation. First, I thought, Damn! poor Jake, how awful! This really, really sucks for him. I even prayed, Lord, have mercy.

But almost with the same intensity that I thought this, pretty much simultaneously, I found myself also thinking, Better him than me!

I know it sounds harsh; I know it makes me a true a-hole. But, it is cancer! There is little else in the world that I fear as much.

Then, like branches from a tree, the second emotion led to two reactions. Hearing it was Jake and not me, I felt both relief and dread at the same time. I felt relief that again somehow I had avoided the odds, missing out, at least for a few more days, on the arrival of the dark demon named cancer. But that relief was contaminated by another feeling: dread. I knew that if Jake could get it, then this demon was certainly real, and no made-up boogie man.

Life really is the linking of experiences and emotions into some kind of frayed but mystically-whole narrative. Our lives are stories that propel us from one plotline to another, building on themselves as they go.

The thing I hate about cancer, truly the thing that takes my breath away in fear, is how it appears, how it seems to bite like a shark, when you least expect it. Your life is going along just fine, as you bob in the turquoise water of your beach vacation, right there in the middle of your life, bang! you’re told it is in peril, the turquoise water turns red as the dead-eyed beast grabs your leg, as cancer takes its hold, thanks to the sterile emotion-less diagnosis of an overworked doctor.

It is the interruption, like teeth penetrating skin sinking to bone, it is the taking of your life’s unfolding and the beating it with a baseball bat that seems so terrible. Even in films, when it happen, when cancer is diagnosed, when it strikes, I'm sent existential. I'm man enough to admit it, I guess, even when I watched Stepmom, when Susan Sarandon’s character got cancer, I cried like a four year old with a bloody skinned knee. I cried because of the interruption, the way that cancer sought to steal her time with her children, to take from them the love of their mother. Cancer is an interruption that divides and separates. That’s why it is a demon; it is the work of demons to divide and separate, to interrupt so that they can steal.

One of my earliest memories was the dividing and separating that cancer, the demon, does. My first friend Benjamin, when we were both four years old, was struck with cancer, and dead months later. At four I watched it interrupt everything, stopping, like a car hitting a cement wall, the unfolding life of a child. I watched the shattering interruption as his parents dealt with the division and separation. And it all started so unassumingly, just with the spotting of a lump under the armpit of a child at bath; and then, then a test, then another, then the words of a doctor telling you that your unfolding life is fucked. And then months later the same doctor says that the interruption will win, that a little boy must be taken by the demon and his body put in that so unnaturally small casket and sent to nothingness.

I hate and fear cancer because of the interruption it brings, because it comes right out of the clear blue sky, blinding you to your future, taking you from love, from otherness, from the embrace we need to be human. Taking you from your very body, stripping you of hair and weight as it cages you in an insatiable concentration camp of violent interruption.

But not only cancer, not only do demons interrupt. So too does the act of God. So too comes God out of the clear blue sky to change all things. Saul's life is unfolding, he is firmly on the trajectory that his life has led him to, a Jew of Jews, circumcised on the eighth day as a member of the tribe of Benjamin. But then, he is struck, he is encountered and all is interrupted.

But this interruption does not act in the shadows with no name, as the demon cancer does, not as the statement of disease, not to divide and separate. Rather, this act of God's interruption comes in the encounter of personhood. It is I, Jesus, whom you persecute. He is the one, the person, to interrupt. And in this person, in the personal interruption, Saul is transformed (an interruption that moves from death to life). Saul becomes Paul; for Paul is not divided or separated but interrupted to be given to others. Paul is interrupted to be given union, to be found "in Christ."

The hope of the gospel, the hope for all those with cancer like Jake, or scared to death of it, like me, is that this God of Jesus Christ is a God that will stand in the breach. This God is given to us, to be person for us, so that He might overcome all division and separation, so that all demons may be cast out, and all that separated may be overcome in love, mercy, and wholeness. This God gives us Godself, so that the dying of our lives might be interrupted by the new life of a coming eschaton, of a new reality, made so in resurrection.

It is only a vision of a crucified God, a resurrected God that calls us to His person. It is I, Jesus! gives me hope that even if the demon comes, even if it is tomorrow, interrupting everything in my life, keeping me from embracing my children, from years with my wife, taking my life, that I will still live. For though the demon may kill me, my life is hidden in the love of the Father to the Son. A love that knows, that embraces, and indwells death, so that it has no more power to finally and completely separate and divided.

So I say to you cancer, “Fuck off, for my life is in Jesus, and though I am too weak and too scared to face you, my God has faced you down, being broken for me, and in so doing overcoming you by bearing you, so that your work of breaking has no power over me. I trust this as an act of faith... but still, just as much as an act of faith, I admit it, I’m still fucking scared.”

Andy RootAndrew Root, PhD (Princeton Theological Seminary) is in Olson Baalson chair as Associate Professor of Youth and Family Ministry at Luther Seminary. He is the author of The Theological Turn in Youth Ministry (with Kenda Creasy Dean, IVP, 2011), The Children of Divorce: The Loss of Family as the Loss of Being (Baker Academic, 2010), Revisiting Relational Youth Ministry: From a Strategy of Influence to a Theology of Incarnation (IVP, 2007) and Relationships Unfiltered (Zondervan/YS, 2009).

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Jake & Libby at the farm

Above: Libby and I share a laugh at the fire while on retreat last weekend.

The latest video update is below. If you're unable to see the embedded video, click here to watch it on YouTube.

If you don't mind, please be sure to "like" the video by clicking the thumbs-up while it's paused. Thanks!

Additional, non-video updates

  • I had heard rumors of this, but it looks like it's official now: My friend Erik is running the Dam to Dam 20K in early June and is raising money for Libby and I to help cover the cost of our medical bills, prescriptions, etc. His fundraising site is here. I share this not to solicit your donations (though they're obviously welcome), but to point again to the insane generosity of the people in my life. Erik is working his butt off to train for the event, and he's decided to tithe 10% of all donations to the Leukemia & Lymphoma Society. Additionally, he says that if three people donate $200, he'll let me shave his head. This could be fun...
  • The retreat at the farm was utterly fantastic. The video pretty much sums it up — lots of good food, rest, reading, and impromptu disc golf. Thanks again to Brandon and Abbey for hosting us. It was exactly what we needed.
  • As you saw in the video, I had a pulmonary function test using a Plethysmograph on Wednesday. I won't hear the results until tomorrow, and I'm not entirely sure if this was a "baseline" test or whether they're able to ascertain problems without having had a test before treatment began. Either way, the following lines from a recent LLS email weren't very encouraging:

    My 12 rounds of chemotherapy ended in the fall of 2010. Unfortunately, I sustained lung damage from one of the chemotherapy agents and had to spend three weeks in the hospital recovering.

    Three weeks! Here's to hoping my lungs are in good shape.

That's all for now. Chemo treatment number five is tomorrow!

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